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Lived Experience Australia is involved in research projects to broaden the evidence base and knowledge of the mental health sector in Australia. This research is also an integral part of how we advocate for better services. We use our learnings from these studies to guide us in what is needed and how we can make things better. 

If you would like to participate in our research or be informed when we release new reports, you can join our mailing list to get our latest research information delivered straight to your in box.

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Shortcomings of services for those with severe and persistent mental health challenges

The opinions of service users and carers are crucial to identifying ways to innovate and implement system change. This study explores the views and experiences of service users and carers on the services they have used for their mental health challenges and their suggestions for service reform.

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Creating positive experiences using NOCC Outcome Measures

A study talking with those with mental ill-health undertaking NOCC Measures with their clinicians to determine what helps make these a positive experience.

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South Australian Carers Experience Survey Report

What Carers say about their Experience of South Australian Mental Health Services 2021 - Report on data from the Carer Experience Survey (CES) SA.

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The 'Missing Middle'
Lived Experience Perspectives

This research identifies why people slip through the gaps or do not receive the mental health care they need.

Understanding the Experiences of Spouse Mental Health Carers

This research explores the unique role of caring for a spouse with severe mental illness.

Personality Disorder

This research explores information from public and private sectors on policies and treatment options for people with BPD and their carers.

Exploring GP Views and Experiences of Providing Care to People with BPD

This research explores the challenges faced by General Practitioners in providing care to patients with BPD.

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Carer Guide Demonstration Project

This research explores the experiences of Ramsay Health Care in implementing the Practical Guide for Working with People with a Mental Illness.

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Communicating My Preferences: Advance Care Planning

This report is the analysis of research conducted by LEA with mental health
consumers and carers. It forms part of a larger project undertaken by Mental Health Australia for the Australian Digital Health Agency.

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Review of Physical and Mental Health Care in Australia

Research into whether those with lived experience of mental ill-health have their physical health considered by their practitioners. 

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What do Consumers and Carers need from Psychology services

This research investigates the consumer and carer experience of psychological services and finds out the barriers to support seeking.

Telehealth Psychiatry Consultation Reports

These research reports provide a national collective voice of consumers’ and carers' experiences accessing telehealth psychiatry services

Adult Mental Health Centre Survey Report

We conducted a survey with consumers and carers to get their perspectives to inform the 8 Adult Mental health Centres proposed for Australia.

Personality Disorder

This research explores experiences of family carers of people diagnosed with Borderline Personality Disorder.

Collaboration in Care
with Family Carers

This research explores collaboration in care with family carers of patients admitted to the Jamie Larcombe Centre in South Australia.

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Understanding Loneliness and Mental Health

In collaboration with the RANZCP, this study and report is the true voice of lived experience sharing about loneliness, and what can be done to mitigate it.

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Preventative Care Trial Protocols in Community Mental Health

12 community mental health services in 3 LHDs in New South Wales, will be randomised to either an intervention group or a control group. 

Australian Mental Health Consumers’ Experiences of Service Engagement and Disengagement A
A published paper in the International Journal of Research and Public Health


This paper is based on our 'Missing Middle' Research.

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How are the NHMRC BPD guidelines faring in practice? A consumer perspective.

We asked BPD identified consumers to share their experiences of care under the NHRMC BPD guidelines, and compared it with data gathered in 2011.

Peer Worker
Research Project

We completed a feasibility project exploring the establishment of a member based organisation for the peer workforce in Australia.

Personality Disorder

This research explores the experience of care by Australians with a diagnosis of Borderline Personality Disorder.

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Implementing Carer Partnership Standards

This research explores the current changes in carer engagement following implementation of the Practical Guide for Working with People with a Mental Illness.

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